Envisioning Racism and REPAIR: Truth and Reconciliation Event
REPAIR Project
The REPAIR Project
Event overview
Envisioning Racism and REPAIR: Truth and Reconciliation Event
Storytelling is the beginning of Repair.
Envisioning REPAIR is a Truth and Reconciliation event centering Black and African American community members’ experiences of harm in healthcare and to highlight community visions for repair.
For centuries, Black Americans’ experiences of the U.S. healthcare system have been characterized by exploitation, abuse, stereotyping, neglect, and often a failure to recognize our basic humanity. Through storytelling, video presentations, and dialogue, this event documents the local stories of harm and invites healthcare professionals, leaders, and community members to witness, reflect, and commit to action.
This is not about blame.
It is about REPAIR.
About the REPAIR Project
The REPAIR Project centers Black and African American community voices to name and address harms caused by systemic anti-Black racism in healthcare and biomedical science.
The REPAIR Project recognizes that long-standing racial inequities in health and racist misrepresentations in academic scholarship result from systemic race-based structural violence and seeks to promote curriculum and policy changes to stimulate efforts to rectify and ultimately eliminate these injustices in the local institutions that serve our communities.
REPAIR works toward equitable health experiences by:
- Building authentic partnerships with community
- Listening to lived experiences and collecting oral histories
- Changing policies and practices within healthcare systems
- Centering community voices in planning interventions for repair.
Keep reading for more detailed information.
About the REPAIR (REPAiring Institutional Racism) Project
The REPAIR Project is a multi-institutional anti-racism collaboration with the University of California at San Francisco, The University of Kansas Medical Center, Johns Hopkins University School of Medicine, the University of California at Davis, and the historically oppressed communities surrounding these institutions. The project is organized around one central question: how can academic health centers repair the harms caused by centuries of neglect, exploitation and abuse of people of color in clinical settings, and by racism in the biomedical sciences that has justified this mistreatment by generating and upholding theories of race, racial difference, and racial inferiority?
Our collective goal is to create positive change and improve equitable health experiences for People of Color. What does creating positive change look like?
- Forming relationships with the communities we serve;
- Hearing community members lived experiences, past, and present harms within the medical system by collecting oral histories;
- Developing solutions of repair through revising current policies and programs; and
- Creating new opportunities within our medical institutions that will support and serve historically oppressed communities..
REPAIR Project Design
The REPAIR Project is designed to address anti-Black racism and augment Black, Indigenous, and People of Color (BIPOC) voices and presence in science and medicine. This project addresses the persistence of racism in medicine as an educational problem by providing a theoretical framework for coordinating and implementing social justice and anti-racism curriculum and interventions throughout the university.
The REPAIR Project recognizes that long-standing racial inequities in health, health care institutions, and academic scholarship result from systemic race-based structural violence and seeks to promote curriculum and policy changes to stimulate efforts to rectify and ultimately eliminate these injustices. In Faces at the Bottom of the Well, legal studies scholar and civil rights activist Derek Bell (1993) reminds us that discussions of injustices experienced by Black Americans continue to distill and serve as a guide for ending racial injustice for other groups.
Each activity, training, and learning module developed under the REPAIR Project is designed and structured to meet one or more of the four pillars of understanding. These pillars have been used to guide the development of new research, inform institutional policies and practices, and enhance community engagement. They are:
- The history of the role of biomedicine in perpetuating racism and reinforcing theories of racial difference and racial inferiority.
- Decolonizing the health sciences from bench to bedside, including deconstructing the use of race as a proxy in medical decision-making.
- Action: developing strategies to address structural racism and other isms from a socio-ecological perspective.
- Accountability: Envisioning how the field of biomedicine can repair these harms.
REPAIR Project in Kansas City
Local Institution-Wide Initiatives Within the REPAIR Framework:
We have identified five areas of focus for repair-centered anti-racism efforts here in Kansas City:
- Institutional Education and Health Equity Trainings
- Anti-racism Curriculum Development for health professions students and residents
- Oral Histories of harm and visions for repair done with community collaboration
- Health Equity Accountability Dashboards for primary care clinical departments
- Collaborations with communities to develop interventions that address structural racism at the community level.
Data Walk
As part of the event, participants were invited to walk through a Data Walk, engaging with themes drawn from community stories about healthcare experiences. Four stations highlighted patterns that emerged across these narratives: disrespect, stereotyping, reproductive health, and what repair could look like moving forward.
We invite you to spend time with these materials here. Whether you attended the event or are encountering this work for the first time, the posters and data sources below offer an opportunity to reflect more deeply on the experiences and themes shared. You may also choose to use the attached survey link to share your reflections with members of the REPAIR team.
Stereotyping and Bias in Healthcare
Reflect on experiences of stereotyping, mistreatment and a lack of dignity within healthcare settings.
Data Resources
Discrimination in the United States: Experiences of black Americans
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Disrespect
Explore how negative experiences in health care—from youth through adulthood—including disrespect and delayed or reluctant treatment can shape health outcomes.
Data Resources
3. Key Data on Health and Health Care by Race and Ethnicity
4. Discrimination in the United States: Experiences of black Americans
5. Perceptions of Discrimination and Unfair Judgment While Seeking Health Care
6. Heart Disease and Stroke Statistics—2023Update: A Report From the American HeartAssociation
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Reproductive Health Dismissal and Its Consequences
Explore how dismissal in reproductive healthcare led to delayed care, preventable complications, and harmful outcomes.
Data Resources
8. Maternal Mortality Rates in the United States, 2023
10. Social Determinants of Health and Disparities in Pregnancy Outcomes
11. Vital Signs: Maternity Care Experiences — United States, April 2023
12. Racial and Ethnic Disparities in Peripartum Hysterectomy Risk and Outcomes
13. Association Between Age, Race, Ethnicity, and Body Mass Index and Time to Endometriosis Diagnosis
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What does REPAIR look like?
Engage with what community members named as necessary for accountability, healing and meaningful change.
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